{"id":36903,"date":"2023-02-26T22:05:00","date_gmt":"2023-02-26T21:05:00","guid":{"rendered":"https:\/\/lasentinelle.dz\/?p=36903"},"modified":"2023-02-26T20:34:45","modified_gmt":"2023-02-26T19:34:45","slug":"maladies-rares-de-lurgence-dun-fichier-national","status":"publish","type":"post","link":"https:\/\/lasentinelle.dz\/index.php\/2023\/02\/26\/maladies-rares-de-lurgence-dun-fichier-national\/","title":{"rendered":"Maladies rares\u00a0: De l\u2019urgence d\u2019un fichier national"},"content":{"rendered":"\n<p>Le lancement d&rsquo;un fichier national d\u00e9di\u00e9 aux maladies rares est devenu un imp\u00e9ratif imp\u00e9rieux, \u00e0 m\u00eame de contribuer au recensement des cas et am\u00e9liorer la prise en charge des patients, a indiqu\u00e9 dimanche \u00e0 Alger, le chef de service P\u00e9diatrie \u00e0 l&rsquo;H\u00f4pital NafissaHamoud (ex Parnet), Pr. Azzedine Mekki.S&rsquo;exprimant lors d&rsquo;une conf\u00e9rence de presse \u00e0 la veille de la c\u00e9l\u00e9bration de la Journ\u00e9e internationale de la lutte contre les maladies rares, Pr. Mekki a insist\u00e9 sur l&rsquo;imp\u00e9ratif de \u00ab\u00a0lancer un fichier national d\u00e9di\u00e9 aux maladies rares en vue de les recenser et am\u00e9liorer par cons\u00e9quent la prise en charge des patients\u00a0\u00bb, appelant \u00e0 associer les acteurs dans le domaine, notamment les sp\u00e9cialistes, la soci\u00e9t\u00e9 civile et les m\u00e9dias.Les personnes souffrant de maladies rares \u00ab\u00a0ont besoin d&rsquo;orientation, d&rsquo;o\u00f9 la n\u00e9cessit\u00e9 de lancer un plan national d\u00e9di\u00e9 \u00e0 ces maladies apr\u00e8s le recensement de tous les patient dans le cadre d&rsquo;un fichier national\u00a0\u00bb, a-t-il ajout\u00e9.En vue de faciliter le diagnostic de ces maladies, il a mis en avant l&rsquo;importance de \u00ab\u00a0renforcer la formation\u00a0\u00bb, notamment au profit des m\u00e9decins g\u00e9n\u00e9ralistes, outre la formation continue des intervenants dans le domaine sanitaire et la soci\u00e9t\u00e9 civile, exhortant \u00e0 impliquer la soci\u00e9t\u00e9 civile et les m\u00e9dias dans l&rsquo;op\u00e9ration de sensibilisation.L&rsquo;Organisation mondiale de la Sant\u00e9 (OMS) a recens\u00e9 8000 maladies rares, a fait observer Pr. Mekki relevant que ces maladies requerraient une prise en charge pluridisciplinaire.<\/p>\n\n\n\n<p>APS<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Le lancement d&rsquo;un fichier national d\u00e9di\u00e9 aux maladies rares est devenu un imp\u00e9ratif imp\u00e9rieux, \u00e0 m\u00eame de contribuer au recensement<\/p>\n","protected":false},"author":3,"featured_media":22515,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"colormag_page_container_layout":"default_layout","colormag_page_sidebar_layout":"default_layout","footnotes":"","_wpscppro_dont_share_socialmedia":false,"_wpscppro_custom_social_share_image":0,"_facebook_share_type":"","_twitter_share_type":"","_linkedin_share_type":"","_pinterest_share_type":"","_linkedin_share_type_page":"","_instagram_share_type":"","_medium_share_type":"","_threads_share_type":"","_google_business_share_type":"","_selected_social_profile":[],"_wpsp_enable_custom_social_template":false,"_wpsp_social_scheduling":{"enabled":false,"datetime":null,"platforms":[],"status":"template_only","dateOption":"today","timeOption":"now","customDays":"","customHours":"","customDate":"","customTime":"","schedulingType":"absolute"},"_wpsp_active_default_template":true},"categories":[27],"tags":[],"class_list":["post-36903","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - 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