{"id":52659,"date":"2024-05-21T15:16:21","date_gmt":"2024-05-21T14:16:21","guid":{"rendered":"https:\/\/lasentinelle.dz\/?p=52659"},"modified":"2024-05-21T15:16:22","modified_gmt":"2024-05-21T14:16:22","slug":"sante-109-maladie-rares-recensees-en-algerie","status":"publish","type":"post","link":"https:\/\/lasentinelle.dz\/index.php\/2024\/05\/21\/sante-109-maladie-rares-recensees-en-algerie\/","title":{"rendered":"Sant\u00e9\u00a0: 109 maladie rares recens\u00e9es en Alg\u00e9rie"},"content":{"rendered":"\n<p>Pas moins de 109 maladies rares ont \u00e9t\u00e9 recens\u00e9es en Alg\u00e9rie. La directrice des programmes de soin et de la d\u00e9ontologie m\u00e9dicale \u00e0 la Direction g\u00e9n\u00e9rale des services de sant\u00e9 du minist\u00e8re de la Sant\u00e9, Dr. Leila Bernou, a mis en avant hier lors l&rsquo;ouverture d&rsquo;un atelier sur les maladies rares en Alg\u00e9rie, \u00ab\u00a0l&rsquo;actualisation de la liste des maladies rares&nbsp;\u00bb. Cette liste qui comptait 13 maladies rares en 2013 en compte 109 actuellement. Lors de l\u2019ouverture des travaux, le ministre de la Sant\u00e9, Abdelhak Saihi a soulign\u00e9 l&rsquo;importance du diagnostic pr\u00e9coce pour la pr\u00e9vention de ces maladies. Il a ainsi pr\u00e9cis\u00e9 que le minist\u00e8re de la Sant\u00e9 \u00ab\u00a0a adopt\u00e9, il y a environ un an, une strat\u00e9gie pour prendre en charge cette cat\u00e9gorie de patients, bas\u00e9e sur le diagnostic pr\u00e9coce des nouveau-n\u00e9s et la cr\u00e9ation d&rsquo;une plateforme num\u00e9rique fiable pour les donn\u00e9es sanitaires relatives aux maladies rares\u00a0\u00bb, soulignant l&rsquo;importance de \u00ab\u00a0l&rsquo;accompagnement psychosanitaire des personnes atteintes de maladies rares, ainsi que le renforcement de la recherche scientifique dans ce domaine, l&rsquo;implication des associations de patients et le d\u00e9veloppement de la th\u00e9rapie g\u00e9nique\u00a0\u00bb. Et d&rsquo;ajouter que le pr\u00e9sident de la R\u00e9publique \u00ab\u00a0a donn\u00e9 des instructions pour allouer des affectations financi\u00e8res \u00e0 la prise en charge des personnes atteintes de maladies rares qui sont consid\u00e9r\u00e9es comme une priorit\u00e9\u00a0\u00bb. Les participants \u00e0 cet atelier ont appel\u00e9 \u00e0 \u00ab\u00a0\u00e9laborer une nouvelle vision et \u00e0 unifier les vues pour une prise en charge optimale des personnes atteintes de ces maladies\u00a0\u00bb.<\/p>\n\n\n\n<p>Chokri Hafed<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Pas moins de 109 maladies rares ont \u00e9t\u00e9 recens\u00e9es en Alg\u00e9rie. La directrice des programmes de soin et de la<\/p>\n","protected":false},"author":3,"featured_media":47340,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"colormag_page_container_layout":"default_layout","colormag_page_sidebar_layout":"default_layout","om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":"","_wpscppro_dont_share_socialmedia":false,"_wpscppro_custom_social_share_image":0,"_facebook_share_type":"default","_twitter_share_type":"default","_linkedin_share_type":"default","_pinterest_share_type":"default","_linkedin_share_type_page":"","_instagram_share_type":"default","_medium_share_type":"","_threads_share_type":"","_google_business_share_type":"","_selected_social_profile":[],"_wpsp_enable_custom_social_template":false,"_wpsp_social_scheduling":{"enabled":false,"datetime":null,"platforms":[],"status":"template_only","dateOption":"today","timeOption":"now","customDays":"","customHours":"","customDate":"","customTime":"","schedulingType":"absolute"},"_wpsp_active_default_template":true},"categories":[27],"tags":[],"class_list":["post-52659","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite"],"aioseo_notices":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Sant\u00e9\u00a0: 109 maladie rares recens\u00e9es en Alg\u00e9rie - La Sentinelle<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lasentinelle.dz\/index.php\/2024\/05\/21\/sante-109-maladie-rares-recensees-en-algerie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sant\u00e9\u00a0: 109 maladie rares recens\u00e9es en Alg\u00e9rie - La Sentinelle\" \/>\n<meta property=\"og:description\" content=\"Pas moins de 109 maladies rares ont \u00e9t\u00e9 recens\u00e9es en Alg\u00e9rie. 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